MND Association - West Yorkshire Branch

Non-Profit
ALS/MND Dedicated

Coverage: West Yorkshire (Leeds, Bradford, Wakefield, Kirklees, Calderdale). Branch cheques via MNDA National: Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton NN3 6BJ (National Office), West Yorkshire, United Kingdom

Overall Score
4.0 / 5.0
4 of 6 dimensions scored · 2 N/A
How is this score calculated?

Score by Dimension

Services Breadth
4/5
Advocacy Reach
N/A
Accessibility
5/5
Patient Support
N/A
Data Completeness
5/5
Network Connectivity
2/5
4 of 6 dimensions scored · 2 marked N/A (excluded from the average).
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Score breakdown

Services Breadth

4/5

Number of service categories this organization offers.

  • ✓2 service categories listed

Advocacy Reach

How broadly this organization advocates and informs the ALS community.

  • —Raises ALS awareness
  • —Online information source
  • —Publishes research / reports
  • —International reach
  • —Engages in policy / advocacy

Accessibility

5/5

How easy it is for patients and families to reach this organization.

  • ✓Has website
  • ✓Has phone number
  • ✓Has email
  • ✓Has street address
  • ✓Has map coordinates

Patient Support

Breadth of direct support offered to patients and families.

  • —In-person support groups
  • —Online support groups
  • —Caregiver resources in services
  • —Funds or provides home care
  • —Children's resources

Data Completeness

5/5

Percentage of profile fields with information.

  • ✓Name
  • ✓Type
  • ✓Country
  • ✓State / region
  • ✓Address
  • ✓Phone
  • ✓Email
  • ✓Website
  • ✓Mission

Network Connectivity

2/5

Connections to research consortia and ALS networks.

  • —Part of a consortia
  • —International reach
  • —Publishes research
  • —Maintains an ALS database
  • ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Contact

Coverage: West Yorkshire (Leeds, Bradford, Wakefield, Kirklees, Calderdale). Branch cheques via MNDA National: Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton NN3 6BJ (National Office)

Mission

Volunteer branch covering West Yorkshire including Leeds, Bradford, Wakefield, Kirklees, and Calderdale. Works closely with the Rob Burrow Centre for MND at Seacroft Hospital Leeds (opened 2024 in memory of rugby league star Rob Burrow who died of MND that same year; supported by Kevin Sinfield's fundraising efforts which raised over £10 million). The Rob Burrow Centre is one of the UK's newest and most modern MND Care Centres. — Regional Patient Support, Association Visitor Home Visits, Peer Support Groups, Fundraising, Awareness Raising, Financial Support Funds, Equipment Loans, Bereavement Support, Volunteer Network

Services
Non-Profit
Advocacy

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