Oulu University Hospital (OYS)

Number of service categories this organization offers.

• ✓1 service category listed

PubMed publications + ClinicalTrials.gov active trials linked to this organization.

• —0 PubMed publications
• —0 active clinical trials

How easy it is for patients and families to reach this organization.

• ✓Has website
• ✓Has phone number
• ✓Has email
• —Has street address
• ✓Has map coordinates

Breadth of direct support offered to patients and families.

• —In-person support groups
• —Online support groups
• —Caregiver resources in services
• —Funds or provides home care
• —Children's resources

Percentage of profile fields with information.

• ✓Name
• ✓Type
• ✓Country
• ✓State / region
• —Address
• ✓Phone
• ✓Email
• ✓Website
• ✓Mission

Connections to research consortia and ALS networks.

• —Part of a consortia
• —International reach
• —Publishes research
• —Maintains an ALS database
• —Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

No community reviews yet — this dimension is excluded from the overall score.

• —No reviews yet

Contact

Mission

Lead: Prof. Majamaa. Northern Finland ALS regional service + national rare-disease register pilot coordinator. Lead: Prof. Kari Majamaa (University of Oulu + Oulu University Hospital) — leads Neurocenter Finland's rare neurological diseases register project, covering MND and Huntington's. Institution: Oys / Pohjois-Pohjanmaan hyvinvointialue (Oulu University Hospital). Coordinates Neurocenter Finland's rare neurological disease national register pilot — includes all 5 Finnish university hospitals (Turku, Helsinki, Tampere, Kuopio, Oulu) Project aims: develop and implement a national electronic register of rare neurological diseases to track MND + HD clinical parameters and natural history Infrastructure foundation for future Finnish MND clinical trial recruitment Neurocenter Finland "Oulu Brain & Mind" node 300,000+ Finns estimated to have rare diseases — Oulu is the population-history anchor for Finnish rare-disease epidemiology