MND-NET — Deutsches Netzwerk für Motoneuronerkrankungen (German Network for Motor Neuron Diseases)
Medical CenterCoordinated by Universitätsklinikum Ulm, Oberer Eselsberg 45, 89081 Ulm, Germany, Baden-Württemberg, Germany
Score by Dimension
Score breakdown
Services Breadth
3/5Number of service categories this organization offers.
- ✓1 service category listed
Advocacy Reach
How broadly this organization advocates and informs the ALS community.
- —Raises ALS awareness
- —Online information source
- —Publishes research / reports
- —International reach
- —Engages in policy / advocacy
Accessibility
5/5How easy it is for patients and families to reach this organization.
- ✓Has website
- —Has phone number
- ✓Has email
- ✓Has street address
- ✓Has map coordinates
Patient Support
Breadth of direct support offered to patients and families.
- —In-person support groups
- —Online support groups
- —Caregiver resources in services
- —Funds or provides home care
- —Children's resources
Data Completeness
4/5Percentage of profile fields with information.
- ✓Name
- ✓Type
- ✓Country
- ✓State / region
- ✓Address
- —Phone
- ✓Website
- ✓Mission
Network Connectivity
2/5Connections to research consortia and ALS networks.
- —Part of a consortia
- —International reach
- —Publishes research
- —Maintains an ALS database
- ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)
Contact
Mission
German national network of university ALS and motor neuron disease centers; coordinates registry studies, clinical trials, and multidisciplinary care standards across Germany. — Medical Centers and Consortia, Research, Clinical Trials, ALS Registry, Professional Training
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