Trinity College Dublin — School of Medicine, Academic Unit of Neurology, based in the Trinity Biomedical Sciences Institute

Research
Multi-Condition · Serves ALS/MND

Dublin, Ireland, Dublin, Ireland

Research
Overall Score
3.8 / 5.0
4 of 6 dimensions scored · 2 N/A
How is this score calculated?

Score by Dimension

Services Breadth
3/5
Advocacy Reach
N/A
Accessibility
5/5
Patient Support
N/A
Data Completeness
5/5
Network Connectivity
2/5
4 of 6 dimensions scored · 2 marked N/A (excluded from the average).
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Score breakdown

Services Breadth

3/5

Number of service categories this organization offers.

  • ✓1 service category listed

Advocacy Reach

How broadly this organization advocates and informs the ALS community.

  • —Raises ALS awareness
  • —Online information source
  • —Publishes research / reports
  • —International reach
  • —Engages in policy / advocacy

Accessibility

5/5

How easy it is for patients and families to reach this organization.

  • ✓Has website
  • ✓Has phone number
  • ✓Has email
  • ✓Has street address
  • ✓Has map coordinates

Patient Support

Breadth of direct support offered to patients and families.

  • —In-person support groups
  • —Online support groups
  • —Caregiver resources in services
  • —Funds or provides home care
  • —Children's resources

Data Completeness

5/5

Percentage of profile fields with information.

  • ✓Name
  • ✓Type
  • ✓Country
  • ✓State / region
  • ✓Address
  • ✓Phone
  • ✓Email
  • ✓Website
  • ✓Mission

Network Connectivity

2/5

Connections to research consortia and ALS networks.

  • —Part of a consortia
  • —International reach
  • —Publishes research
  • —Maintains an ALS database
  • ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Mission

Academic research hub for MND/ALS (research-only; not a patient clinic itself, but inseparable from Beaumont's clinical service). Lead: Prof. Orla Hardiman (cross-appointed Beaumont). World-class research strengths: clinical evaluation, epidemiology, neuropsychology, genetics, brain imaging, neural engineering, neural electrophysiology (MRI + EEG) Notable discoveries & publications: ANG gene involvement in ALS; shared genetic basis between MND and schizophrenia (published 2019–2021 with major international coverage); "The epidemiology of ALS: a conspiracy of genes, environment and time" (Al-Chalabi & Hardiman, *Nat Rev Neurol* 2013 — a foundational ALS epidemiology review cited >1,000 times). Irish ALS/MND Register — continuously operated since 1990s by Hardiman group. Underpins population-based epidemiology; all-Ireland collaboration with Belfast's Donaghy, Patterson, Kee group has produced joint North-South publications (e.g., Donaghy et al. 2010, 2022). PRECISION-ALS (2022–): €10M Irish-led pan-European programme; integrates data from TRICALS partner sites into a single AI-enabled platform for precision ALS medicine.

Services
Research

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