APN (Associação Portuguesa de Neuromusculares), registered IPSS (Instituição Particular de Solidariedade Social) + Utilidade Pública status

Number of service categories this organization offers.

• ✓2 service categories listed

How broadly this organization advocates and informs the ALS community.

• —Raises ALS awareness
• —Online information source
• —Publishes research / reports
• —International reach
• —Engages in policy / advocacy

How easy it is for patients and families to reach this organization.

• ✓Has website
• ✓Has phone number
• ✓Has email
• ✓Has street address
• ✓Has map coordinates

Breadth of direct support offered to patients and families.

• —In-person support groups
• —Online support groups
• —Caregiver resources in services
• —Funds or provides home care
• —Children's resources

Percentage of profile fields with information.

• ✓Name
• ✓Type
• ✓Country
• ✓State / region
• ✓Address
• ✓Phone
• ✓Email
• ✓Website
• ✓Mission

Connections to research consortia and ALS networks.

• —Part of a consortia
• —International reach
• —Publishes research
• —Maintains an ALS database
• —Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Contact

Mission

Portugal's broadest neuromuscular patient association (est. 1992) — covers ALS + SMA + muscular dystrophies + all NMDs. Home physiotherapy service — Grande Porto region (Prémio BPI Capacitar 2017 menção honrosa); based from new APN Porto headquarters Psychology Service — support for patients, caregivers, families across all stages of diagnosis Social support service — promoting patients' rights, integration, and quality of life "Cuidar+" — informal caregiver training program; pilot with 85 participants (2023-2024); referential for nationwide formation