ALS Residency Initiative

Number of service categories this organization offers.

• ✓1 service category listed

How broadly this organization advocates and informs the ALS community.

• —Raises ALS awareness
• —Online information source
• —Publishes research / reports
• —International reach
• —Engages in policy / advocacy

How easy it is for patients and families to reach this organization.

• ✓Has website
• ✓Has phone number
• ✓Has email
• ✓Has street address
• ✓Has map coordinates

Breadth of direct support offered to patients and families.

• —In-person support groups
• —Online support groups
• —Caregiver resources in services
• —Funds or provides home care
• —Children's resources

Percentage of profile fields with information.

• ✓Name
• ✓Type
• ✓Country
• ✓State / region
• ✓Address
• ✓Phone
• ✓Email
• ✓Website
• ✓Mission

Connections to research consortia and ALS networks.

• —Part of a consortia
• —International reach
• —Publishes research
• —Maintains an ALS database
• —Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Contact

Mission

ALSRI seeks to find generous donor(s) to establish an 8-figure endowment ($12-$14M) to immediately open a 10 person ALS Residence within the Leonard Florence Center for Living. Further, ALSRI hopes to inspire other mission driven non-profit nursing homes to build homes for people with ALS (pALS) that are residential and provide 24 hour skilled care that is as compassionate and consistent as your own family within an environment that is fully automated and prepared to provide vent support to allow pALS and people who are similarly disabled to live with their disability instead of die of it. Until medicine proves otherwise, technology IS the cure.