University Hospital Jena - Neuromuscular Centre
ClinicNeuromuscular Centre, Am Klinikum 1, 07747 Jena, Germany, Thuringia, Germany
Score by Dimension
Score breakdown
Services Breadth
3/5Number of service categories this organization offers.
- ✓1 service category listed
Research Activity
PubMed publications + ClinicalTrials.gov active trials linked to this organization.
- —0 PubMed publications
- —0 active clinical trials
Accessibility
5/5How easy it is for patients and families to reach this organization.
- ✓Has website
- ✓Has phone number
- ✓Has email
- ✓Has street address
- ✓Has map coordinates
Patient Support
Breadth of direct support offered to patients and families.
- —In-person support groups
- —Online support groups
- —Caregiver resources in services
- —Funds or provides home care
- —Children's resources
Data Completeness
5/5Percentage of profile fields with information.
- ✓Name
- ✓Type
- ✓Country
- ✓State / region
- ✓Address
- ✓Phone
- ✓Website
- ✓Mission
Network Connectivity
2/5Connections to research consortia and ALS networks.
- —Part of a consortia
- —International reach
- —Publishes research
- —Maintains an ALS database
- ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)
Community Rating
0/5No community reviews yet — this dimension is excluded from the overall score.
- —No reviews yet
Contact
Mission
Lead: Prof. Julian Grosskreutz. Neuromuscular Centre at University Hospital Jena, treating approximately 700 neuromuscular disease patients annually. Key physicians: Dr. Annekathrin Rödiger and Dr. Robert Steinbach. Offers specialist consultation for neuromuscular and motor neuron diseases, plus interdisciplinary day-clinic setting for diagnosis, therapy initiation, and follow-up. Services include drug treatment, AmbulanzPartner-facilitated medical aid provision, socio-medical counselling, therapy study participation (ALS, myasthenia gravis), feeding tube placement with intensive care follow-up, polysomnography, NIV initiation, and specialized gene therapies for SMA. Research focus on biomarker identification via MRI surrogate parameters and skin biopsy cytoskeletal analysis. Core partner in Charité-coordinated MND-Net AmbulanzPartner sub-project since 2012. — ALS Clinic, Multidisciplinary Care, Specialized Neurology, Neuromuscular Disorders, Clinical Trials, Research, Genetic Testing, Biomarker Analysis, MND-NET Member, Day-Clinic Setting, Polysomnography, 700 Annual NM Patients, Skin Biopsy Research
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