Setor de Investigação em Doenças Neuromusculares da UNIFESP

Number of service categories this organization offers.

• ✓1 service category listed

PubMed publications + ClinicalTrials.gov active trials linked to this organization.

• —0 PubMed publications
• —0 active clinical trials

How easy it is for patients and families to reach this organization.

• ✓Has website
• ✓Has phone number
• —Has email
• ✓Has street address
• ✓Has map coordinates

Breadth of direct support offered to patients and families.

• —In-person support groups
• —Online support groups
• —Caregiver resources in services
• —Funds or provides home care
• —Children's resources

Percentage of profile fields with information.

• ✓Name
• ✓Type
• ✓Country
• ✓State / region
• ✓Address
• ✓Phone
• —Email
• ✓Website
• ✓Mission

Connections to research consortia and ALS networks.

• —Part of a consortia
• —International reach
• —Publishes research
• —Maintains an ALS database
• ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

No community reviews yet — this dimension is excluded from the overall score.

• —No reviews yet

Contact

Mission

Lead: Prof. Acary Souza Bulle Oliveira. Brazil's flagship academic ALS/MND research and clinical center; ABrELA co-located institutional partner; founding Brazilian ALS clinical care model. Founding Brazilian ALS/MND multidisciplinary clinical model — Dr. Acary Oliveira's vision, implemented through UNIFESP Setor de Investigação em Doenças Neuromusculares ABrELA founded 1998 — Brazil's national ALS patient advocacy organization Federal public utility status since October 15, 2008 (Título de Utilidade Pública Federal, Diário Oficial da União seção 1, folha 56, ISSN 1677-7402) International Alliance of ALS/MND Associations member First Brazilian epidemiological ALS study participant