Instituto de Neurología, Hospital de Clínicas Montevideo - LAENALS Affiliate Site

Number of service categories this organization offers.

• ✓1 service category listed

How broadly this organization advocates and informs the ALS community.

• —Raises ALS awareness
• —Online information source
• —Publishes research / reports
• —International reach
• —Engages in policy / advocacy

How easy it is for patients and families to reach this organization.

• ✓Has website
• ✓Has phone number
• ✓Has email
• —Has street address
• ✓Has map coordinates

Breadth of direct support offered to patients and families.

• —In-person support groups
• —Online support groups
• —Caregiver resources in services
• —Funds or provides home care
• —Children's resources

Percentage of profile fields with information.

• ✓Name
• ✓Type
• ✓Country
• ✓State / region
• —Address
• ✓Phone
• ✓Email
• ✓Website
• ✓Mission

Connections to research consortia and ALS networks.

• —Part of a consortia
• —International reach
• —Publishes research
• —Maintains an ALS database
• —Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Contact

Mission

Uruguay's flagship ALS academic institution; LAENALS founding member country institution; highest Latin American ALS prevalence documented (2.19/100,000 in 2018). LAENALS founding country institution — Uruguay is one of three founding LAENALS countries (with Cuba and Chile) Highest documented ALS prevalence in Latin America — 2.19 per 100,000 crude prevalence in 2018 (Uruguay adult population aged 15+) Highest annual ALS incidence in LAENALS — 1.73 per 100,000 in 2018 Longest Latin American median survival — 32.43 months (21.93-42.36 IQR) from onset 90 Uruguayan ALS patients included in LAENALS 2017-2019 cohort (55.6% men; mean age at onset 61.8 ± 11.96 years)