ALS Association

Organization
ALS/MND Dedicated

1300 Wilson Boulevard, Suite 600. Arlington, VA 22209, Virginia, United States

Serves: Nationwide

EquipmentResearch
Overall Score
3.8 / 5.0
4 of 6 dimensions scored · 2 N/A
How is this score calculated?

Score by Dimension

Services Breadth
3/5
Advocacy Reach
N/A
Accessibility
5/5
Patient Support
N/A
Data Completeness
5/5
Network Connectivity
2/5
4 of 6 dimensions scored · 2 marked N/A (excluded from the average).
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Score breakdown

Services Breadth

3/5

Number of service categories this organization offers.

  • ✓1 service category listed

Advocacy Reach

How broadly this organization advocates and informs the ALS community.

  • —Raises ALS awareness
  • —Online information source
  • —Publishes research / reports
  • —International reach
  • —Engages in policy / advocacy

Accessibility

5/5

How easy it is for patients and families to reach this organization.

  • ✓Has website
  • ✓Has phone number
  • ✓Has email
  • ✓Has street address
  • ✓Has map coordinates

Patient Support

Breadth of direct support offered to patients and families.

  • —In-person support groups
  • —Online support groups
  • —Caregiver resources in services
  • —Funds or provides home care
  • —Children's resources

Data Completeness

5/5

Percentage of profile fields with information.

  • ✓Name
  • ✓Type
  • ✓Country
  • ✓State / region
  • ✓Address
  • ✓Phone
  • ✓Email
  • ✓Website
  • ✓Mission

Network Connectivity

2/5

Connections to research consortia and ALS networks.

  • —Part of a consortia
  • —International reach
  • —Publishes research
  • —Maintains an ALS database
  • ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Contact

Mission

To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. As of September 2023, the ALS Association unified 18 chapters into one national organization. 15 other chapters separated to form ALS United.

Services
Adaptive Technology

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